For better treatment and research for women with Parkinson's Disease
RAISING OUR VOICES
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There are more than 10 million people worldwide diagnosed with Parkinson's Disease. How many are women? What is the average age women are diagnosed? How do women react differently to medication than men? There are no clear answers. We need answers.
And so we started the Women's Parkinson's Project to raise our voices for better treatment and research for women with Parkinson’s disease.
The Women's Parkinson's Project
How My Morning Routine Has Changed Because of PD
Mornings look quite different than they used to. There is no such thing as waking up, jumping out of bed, and then hopping in the shower. There is no get up and go. Instead, mornings move slowly. The process of getting ready for the day takes much longer. I need an extra hour to get ready. I need to come to life before getting ready.
The Spoon Theory: A Day in My Life
Every morning I wake up feeling hopeful. Hopeful that I will accomplish all the things on my list and spend quality time with those I love.
I try to push aside the morning tremors and stiffness with positive thoughts. I choose to not focus on the fact that after living with Parkinson’s for nearly a decade that slowly but surely, the symptoms and management of them is taking increasing amounts of my time and energy.
Hospital Date
Siddharth has managed to book my appointment with the specialist from the UK. He visits every three months and has good experience with YOPD.
As expected, his charges are high, but we wanted to go with an open mind. The next morning, we were ready by 6 a.m. and had to catch the train in 40 min from Tirupati to Chennai.
A Day Without Meds Is Like A Day Without . . .
I started taking Levodopa five years ago immediately following diagnosis. Right from the start, I didn't notice a significant impact. Other PWP spoke about their on/off times and how they often watch the clock in anticipation of their next dose and with it, the intended relief. I
Today Is Going To Be A Good Day
Today is going to be a good day, getting ready for a special night away with friends.
I actually managed to get back to sleep after waking up at my usual time of 4:30 am so I'm well rested and ready to get stuff done. My nights are very restless - I talk, laugh, shout and fling my arms around in my sleep. A while back I even managed to throw myself out of bed.
Our Team
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Richelle Flanagan
CO-FOUNDER
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Kat Hill
CO-FOUNDER
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Sree Sripathy
CO-FOUNDER